Kiselny tupik, 1-11, Moscow, 107031, Russia
8(495)711-95-81

Inter-regional Charity Public Organization of Disabled People “The Union of Patients and Patient Organizations of Rare Diseases”

Moscow

We deal with

  • Medical Treatment
  • Rare (orphan) diseases

We help

  • Children (0-11 years)
  • Adolescent (12-17 years)
  • Adult (18-59 years)
  • Aged (older 60 years)
  • Disabled person

Charity description

MISSION:
To unite and coordinate efforts of patients with rare and orphan diseases, doctors, researchers, statesmen, social organizations and society as a whole in order to improve diagnostics, access to treatment and life support for patients with rare and orphan diseases.

GOALS:
• To support research of new methods of diagnostics and treatment of rare and orphan diseases;
• To support the rights of patients with rare and orphan diseases according to the Constitution of the Russian Federation;
• To help patients with rare and orphan diseases.

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